Jontefonden

Over three hundred children are fighting for their lives. With long stays in hospital, isolation and loneliness, the need for support is great. Their everyday lives are marked by painful hospital stays, isolation and loneliness. We therefore offer extensive support efforts and are ready around the clock, to provide comfort and support when needed most.

Our activities include the entire family. With conversation support, camp activities and networks, we create togetherness and security.

According to statistics, one person in Sweden dies every week waiting for an organ transplant. This includes both adults and children. Jontefonden supports the children and youth who are waiting for or have gone through an organ transplantation. It was established by the Ivarsson family when their son Jonathan waited for new lungs due to pulmonary fibrosis. After waiting many years, the transplantation finally took place, but failed. Jonathan was in palliative care until he passed away.

The children supported by Jontefonden are very lonely children who often can neither go to school nor play with other children. Jontefonden supports them and their families while waiting for a transplant. They offer families relief in the form of a vacation or something similar, as well as provide equipment to hospitals. They also help create networks between affected families to help support them in their everyday, tough life. Even after a transplant, these children have a difficult time. They don’t dare show their scars, and they cannot go back to a “normal” life since they never experienced one. Finally, Jontefonden provides support for palliative care and post-transplant recovery, areas that are still in great need of resources.